Wednesday, July 9, 2008

Treatment #2 and July 4th

Yet again I am behind...Sorry everyone! I will do my best to include as much information as possible but its late and I may leave some blanks. HERE GOES....

July 4th:

Stevie and Tawana stayed the night Thursday night so Mama got to see the kids for a little while. We all got up and had breakfast together but Stevie's family along with Tedd and myself headed out pretty early for Alabama. Jay had borrowed a friends boat and took it out on the river for the day. Of course it rained on the drive over and for about the first hour we were there. For some reason unknown to mankind we allowed Jay to pull us on a tube...my backside is STILL sore! :) Tedd and I only stayed for a couple of hours before heading back. We stopped and picked up fireworks...got home about 8:30 and had a small fireworks display for mama and daddy before calling it a night. I didn't get to see much of mama but she and I did have a blast with our sparklers on the back of the truck!

July 5th:

We pretty much did nothing...Mama was feeling really weak and Daddy had to work so we sat around and play rummikub. Later that evening we took Jake Ray out to the fish house for his graduation...we couldn't go because of mama's surgery. OH YEAH and Mama talked Tedd into rearranging the pantry(more like dug her elbow into his shoulder until he agreed) :) Overall a pretty good day!

July 6th:

So this day was kinda "stinkypoo" in the words of Mama. We went to church and she preached a great message and of course she danced! When we got home, Mama took a shower knowing her hair would most likely all come out only little did we know how difficult it would be. He hair did not simply fall out! The hair that had fallen out in the shower had formed a knot all the way down her back...it matted up basically. She came out and had me try to help but once she realized we would never get it out we had no other option but to cut it. As you can imagine this was extremely painful and emotional for mama who has not cut her hair in over 20 yrs since receiving the Holy Ghost. Tedd and I cut it as far down as we could but by the time we were finished she had a short bob that hit right below her ears. After it dried, I curled it all up and we took her out to eat baked spaghetti! She was very brave about going inside with her hair...It was still hard. It was an extremely draining day emotionally.

July 7th:

Today we were SPOILED! We slept in then went to Memphis to go shopping for wigs. It was tough to start out with but after trying on lots of hair we picked out two very cute light red wigs! We even found a curly bang so she would still have her curls! ALSO, we order a MARILYN MONROE wig off line...Mama said she can't wait to go incognito to WalMart HAHA! After finding lovely hair that she does NOT have to curl every morning what more could Mama ask for??? OH YES...GODIVA AND NINE WEST! We hit up the Wolfchase Galleria for a little shopping! Tedd spoiled us with new shoes and chocolate...I know ...I have the best boyfriend ever! After successfully wearing mother out we brought her tired little self home and put her to bed while Tedd and I stayed up preparing for her treatment the next day. Last treatment we bought out the vending machines so this time we got smart and made sandwiches and packed drinks and snacks also pillows, blankets, cards, magazines, Bible with commentaries, iHome, and a cd player! WE WERE PREPARED or sooo we thought....

July 8th:

TREATMENT #2 Her appt was at 8am and we were about 15 minutes late...no one to blame *cough cough* TEDD *cough cough* Things looked a lot busier and were moving very slowly when it came to our attention that they had scheduled the patients who missed treatment on July 4th along with all regular Tuesday appts. 40 patients for a chemo room that seats only 18. It was apprx 10am before we went to lab and about 11am before we saw the dr and headed to chemo. After sitting in the chemo room for over an hr without starting treatment the nurse informs us that the in-house pharmacy is backed up because the other chemo center downstairs also had doubled booked. CRAZY! Plus side is that Mama's port worked amazingly! She was so thrilled to only be stuck one time! Thank God! We had to have Sis Angel come sit with mama for the last two hrs of her treatments because I had to get Tedd to the airport in Jackson, Ms...dont ask. It was a long day. I got home about 12:45 and Mama and Daddy were still up watching Little House on the Prairie. Something in her pre meds yesterday caused her to be restless all night last night. ON TO THE GOOD NEWS...

CA 125 results were 105!! They dropped 48 points!! if they stay at this pace we might only have to do two more treaments!! :) There was a little bad news...the dr says her liver counts are up which could be due to the chemo or due to the amount of pain medication. He didn't want to do anything this time but said that if they arent back down by the next treatment she will have to see a specialist so please be prayful about that! Other than that everything looked great and Dr. Santoso seemed to think that everything is working!

July 9th:

Dont ask me about anything before 1:30 pm! I was out! Tedd had major issues with his flight and getting back to Oklahoma so I was up til early this morning trying to help him work everything out. After I got up Mama wanted me to redo the organization job that my boyfriend had done on the pantry so Jake Ray and I scrubbed and cleaned for quite sometime then Mama and I settled in for a long evening of Little House...we laid around watching Season 8 until 9pm. She was so drained from no sleep last night that she got a shower and had me read a little from Psalms then she crashed. I have been up for quite sometime cleaning and trying to get somethings accomplished after sleeping a day away.

I think that about covers everything guys...heading to bed now. Sorry again! Please post your comments and thanks again for everything! The cards and flowers are so appreciated! :) God Bless!

Focused Prayer:
-Liver count to decrease: If it gets too high they will stop her treatments and we do not want that.
-Joy: Losing her hair has been a punch in the gut so please send some joy this way!
-Strength: The first week after a treatment seems to be the hardest on her body.
-NO SIDE EFFECTS: We would really love NOT to experience the neuropathy this week from her treatment...last time was way too rough on her.
-Peace!

THANKS!
Charlcy

3 comments:

redheadedmommie said...

This too shall pass.....MUCH LOVE!!!


Stacy

stevbo said...

You go girl, I can't wait to see your lovely hair style. Love you massive Stevbo.

Becky said...

Good mornig Marilyn,
I hope you're having a good day and I hope this message gets through, so many haven't. It's good to hear you're spending a lot of time with your family. Some just crawl in a hole and give up. I know those grand children can be a handful but they can be the light of our lives. It appears your daughter keeps up on your toes as well. She sounds like a bundle of energy!! Oh to be young..
I hope everything continues toward progress and recovery. Take care of yourself and God's blessings.
Love Becky